walking with aden

I have this awesome little guy I want you to meet:DSC_0882 copyAden! He’s one of my favourites! No doubt.

Aden loves his family and the drums and he is sure to say hello to you in the most friendliest way whenever you see him. Aden just turned five and in a few weeks he’s helping to host a walk to raise awareness about Williams Syndrome.

Williams syndrome (WS) is a genetic condition that is present at birth and can affect anyone.  It is characterized by medical problems, including cardiovascular disease, developmental delays, and learning disabilities.  These often occur side by side with striking verbal abilities, highly social personalities and an affinity for music.logo

I’ve known Aden since the day he was born and have been lucky to spend time with him on family vacations to Florida and camping. We’ve had a lot of fun watching him grow and become such a great kid.

As I mentioned, Aden and his family are hosting a walk for the CAWS (Canadian Association of Williams Syndrome) on June 11 in Bedford, at the Dewolf Park, to raise awareness about Williams Syndrome. There will be live music, face painting and food. Please come join us! 
2013-2015 copy DSC_0711 copyCheck him and his mom out on the morning news, what a rock star:

CTV News Atlantic – Williams Syndrome

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For more information about the walk and Williams Syndrome, please visit here.

The Canadian Association of Williams Syndrome (CAWS) provides support to Williams syndrome individuals and their families. To advance and assist education, research and knowledge of Williams Syndrome and to participate in research projects and efforts. CAWS assist those with WS in achieving their full potential through advocacy, education, scholarships and a sense of community. CAWS support families as they move through the stages of initial diagnosis, through the school system and as they enter adult life and new experiences like finding employment and housing.

Their goals are:

  • To support research into the educational, behavioural, social and medical aspects of Williams syndrome.
  • To increase awareness of Williams syndrome and the CAWS organization so individuals with Williams syndrome and their families don’t feel alone as they endeavour to help the individual reach his or her potential.
  • To become visible to the medical scientific, educational and professional communities by providing information on Williams syndrome.

CAWS is a registered non-profit organization in Canada.

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3 thoughts on “walking with aden

  1. Pingback: meanwhile, elsewhere | hello sunshine

  2. Pingback: meanwhile, elsewhere | hello sunshine

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